Who are we?

We are an international group of collaborating researchers – including the SUDEP executive board and the SUDEP advisory committee - dedicated to uncovering the risk factors, causes, and mechanisms of SUDEP so that we may improve future epilepsy treatment and SUDEP prevention.

What do we do?

  • We have launched the North American SUDEP Registry in order to document and analyze cases of SUDEP so that we may illuminate its risk factors and causes and develop preventative measures.
  • By promoting SUDEP awareness, we aim to provide epileptic patients and their families with the information and tools necessary to make informed decisions.
  • We work to facilitate the donation of DNA and brain tissue of those who have suffered from SUDEP; research on DNA and brain tissue can give us important genetic, neurophysiological, and other information that is vital to the success of our mission.

 

 

NASR Executive Board                                              

 

Affiliation

 

Orrin Devinsky, MD (Principal Investigator)

Jeffrey Buchhalter, MD, PhD

Laura Crandall, MA

Elizabeth Donner, MD, F.R.C.P.C. 

David R. Fowler, MD  

Daniel Friedman, MD

Dale Hesdorffer, PhD

 

NYU Langone & Saint Barnabas Medical Centers, FACES

Alberta Children's Hospital

MASUDC Program, NYU Langone Medical Center

The Hospital for Sick Children, Canada

Chief Medical Examiner for Maryland

NYU Langone Medical Center

Columbia University Medical Center

 

NASR Advisory Committee                                     

 

Affiliation

 

Lisa Bateman, MD, F.R.C.P.C.

Gregory Davis, MD                                  

Julian Isla

Lawrence Hirsch, MD

Tamzin Jeffs, MS                                                    

Sam Lhatoo, MD

 Ling Li, MD

Matt Lunn, MS, F-ABMDI 

Kim Meador, MD

Jennifer Murphy, MS

Mary Ann Sens, MD, PhD

Geoffrey Pitt, MD, PhD

Philippe Ryvlin, MD, PhD

Stephan Schuele, MD, PhD

Tom Stanton, MS

Lindsey Thomas, MD

David Thurman, MD, PhD

                                           Niu Tian, MD, PhD

Gary Watts

Vicky Whittemore, PhD

Brian Moseley, MD

Janice Buelow

Jocelyn Cheng

Elizabeth Bundock, MD

Ingrid Scheffer, AO PhD FAA FAHMS

Sanjay Sisodiya, PhD

 

 

Columbia University Medical Center

University of Alabama at Birmingham, Jefferson County (AL) ME

Dravet Syndrome Foundation (Spain)

Yale University School of Medicine

SUDEP Aware

Case Western Reserve University School of Medicine, NIH Center for SUDEP Research (CSR)

Office of the Chief Medical Examiner, Maryland

Arapahoe County (CO) Coroner's Office

Stanford University School of Medicine

University of New Mexico School of Medicine

University of North Dakota

Duke University School of Medicine

Lausanne University Hospital, Switzerland

Northwestern University Feinberg School of Medicine

Danny Did Foundation

Hennepin County (MN) Medical Examiner's Office

Centers for Disease Control and Prevention, Emory University School of Medicine

Centers for Disease Control and Prevention

Richland County (SC) Coroner's Office

NIH/NINDS

University of Cincinnati

Indiana University

NYU Langone Medical Center

Vermont Department of Health, OCME

University of MelBourne, Florey Institute                   

University College London