Who are we?

We are an international group of collaborating researchers – including the SUDEP executive board and the SUDEP advisory committee - dedicated to uncovering the risk factors, causes, and mechanisms of SUDEP so that we may improve future epilepsy treatment and SUDEP prevention.

What do we do?

  • We have launched the North American SUDEP Registry in order to document and analyze cases of SUDEP so that we may illuminate its risk factors and causes and develop preventative measures.
  • By promoting SUDEP awareness, we aim to provide epileptic patients and their families with the information and tools necessary to make informed decisions.
  • We work to facilitate the donation of DNA and brain tissue of those who have suffered from SUDEP; research on DNA and brain tissue can give us important genetic, neurophysiological, and other information that is vital to the success of our mission.

 


 

NASR Executive Board                                              

 

Affiliation

 

Orrin Devinsky, MD (Principal Investigator)

Jeffrey Buchhalter, MD, PhD

Laura Crandall, MA

Elizabeth Donner, MD, F.R.C.P.C. 

David R. Fowler, MD  

Daniel Friedman, MD

Dale Hesdorffer, PhD

 

NYU Langone & Saint Barnabas Medical Centers, FACES

Alberta Children's Hospital

MASUDC Program, NYU Langone Medical Center

The Hospital for Sick Children, Canada

Chief Medical Examiner for Maryland

NYU Langone Medical Center

Columbia University Medical Center


 

NASR Advisory Committee                                     

 

Affiliation

 

Lisa Bateman, MD, F.R.C.P.C.

Gregory Davis, MD                                  

Julian Isla

Lawrence Hirsch, MD

Tamzin Jeffs, MS                                                    

Sam Lhatoo, MD

 Ling Li, MD

Matt Lunn, MS, F-ABMDI 

Kim Meador, MD

Jennifer Murphy, MS

Mary Ann Sens, MD, PhD

Geoffrey Pitt, MD, PhD

Philippe Ryvlin, MD, PhD

Stephan Schuele, MD, PhD

Tom Stanton, MS