Who are we?
We are an international group of collaborating researchers – including the SUDEP executive board and the SUDEP advisory committee - dedicated to uncovering the risk factors, causes, and mechanisms of SUDEP so that we may improve future epilepsy treatment and SUDEP prevention.
What do we do?
- We have launched the North American SUDEP Registry in order to document and analyze cases of SUDEP so that we may illuminate its risk factors and causes and develop preventative measures.
- By promoting SUDEP awareness, we aim to provide epileptic patients and their families with the information and tools necessary to make informed decisions.
- We work to facilitate the donation of DNA and brain tissue of those who have suffered from SUDEP; research on DNA and brain tissue can give us important genetic, neurophysiological, and other information that is vital to the success of our mission.
NASR Executive Board
Orrin Devinsky, MD (Principal Investigator)
Jeffrey Buchhalter, MD, PhD
Laura Crandall, MA
Elizabeth Donner, MD, F.R.C.P.C.
David R. Fowler, MD
Daniel Friedman, MD
Dale Hesdorffer, PhD
NYU Langone & Saint Barnabas Medical Centers, FACES
Alberta Children's Hospital
MASUDC Program, NYU Langone Medical Center
The Hospital for Sick Children, Canada
Chief Medical Examiner for Maryland
NYU Langone Medical Center
Columbia University Medical Center
SUDEP Institute, Epilepsy Foundation
NASR Advisory Committee
Lisa Bateman, MD, F.R.C.P.C.
Gregory Davis, MD
Lawrence Hirsch, MD
Tamzin Jeffs, MS
Sam Lhatoo, MD
Ling Li, MD
Matt Lunn, MS, F-ABMDI
Kim Meador, MD
Jennifer Murphy, MS
Mary Ann Sens, MD, PhD
Geoffrey Pitt, MD, PhD
Philippe Ryvlin, MD, PhD